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Cake walk held to help 2-year-old victim of rare Chiari malformation
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katie dennis
https://www.facebook.com/TeamHunterD
Aimee Zemanek
Chiari is NOT RARE.
katie dennis
Thats why we need to get the word out there more so people know that its just as important as any other disorder or disease
Michelle Rivera
Chiari is far from rare. I would like to talk with mom and let her know she’s not alone. We’re all around and there are helpful groups because doctor’s are far and few who want to deal with us chiarians.
katie dennis
Thanks Michelle, you can contact me on the link at the top for hunters page :)
katie dennis
They say its 1 in 1000 people have it, more like rarely heard of not heard of enough thats why we need to get the word out. just as many people have chiari as they do cancer and we need to let it be known.. People think cancer such a big deal and it is but so is chiari, it has to do with your brain. I dont know not one person in my town who has it and would like to meet someone. Doctors dont know enough about it like they should.
pe
I want to encouragement with her.