Fire Trucks to Carry the Casket of 4 Year-old Breylon Senn

HOWARD CITY, Mich.- Breylon Senn, 4, of Howard City, lost his battle with Mitochondrial Disease on Friday, Feb. 15. It’s a disease that attacks the organs and eventually causes them to fail.

Since July of 2012, FOX 17 has followed the Senn family, who also has a now 1 year-old daughter, Brynlee, with ‘Mito’. FOX 17 was able to urge viewers to “Pay it Forward” and donate to the family so they could see a specialist in Atlanta. The outcome was bittersweet; the outlook was hopeful for Brynlee while Brey’s time was going to be limited.

In September, the family put on a 5K with all of the proceeds going to the United Mitochondrial Disease Foundation-Breylon Senn Research Fund. Even Brey got pushed across the finish line, hands flying in the air, in his wheelchair. Brey was able to go home for Christmas and his parents were told it would be his last hospital stay because there’s nothing more that doctors could do. He was put on hospice with nurses keeping him comfortable with pain medicines.

One of Brey’s wishes was to ride on a fire truck. Recently, a fire helmet and uniform was retired and given to Brey at home.

On Friday, Brey took his final breath; funeral plans already put into place. They include the Stanton Fire Department making good on Brey’s wish to ride on a truck. The hoses on top of the truck will be moved out-of-the-way, so his casket can be placed on top.

“It’s pretty much reserved for those line of duty deaths and things like that, so for Breylon it should be a pretty good honor and it’s not something¬† that we do for just anybody, but given his circumstance we made the exception.” Lt. Brandon Stowell said.

Brey’s visitation will be from 2 p.m. to 5 p.m. on Sunday, Feb. 17 at Hurst Funeral Home in Greenville. Funeral services are set for 11 a.m. on Monday, Feb. 18 at Trinity Church, Stanton with a luncheon following at the Stanton First Baptist Church gym. Those in attendance are encouraged to wear green in honor of Mitochondrial Disease Awareness. Those wishing to donate can give to the United Mitochondrial Disease Foundation-Breylon Senn Research Fund.

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11 comments

  • T. Sanders

    Thoughts and prayers to the Senn family. Hats off to Brey for a courageous fight against a little known disease. We lost our daughter Ellyse to a mitochondrial disorder in 2008.
    The Sanders Family

  • shyhippy

    What a brave and courageous little guy! He was a fighter and was lucky enough to have a loving family who was there for him all the way!!! My heart and prayers go out to the Senn Family. I lost my special needs son on Feb 14,2011 and it was the worst time of my life!! I cared for him for 27 years and would do it all over again! These Angels teach us alot and are a joy in our lives for the short time we have them!! He will be with you in your hearts and memories always!! He is you Guardian Angel in Heaven!!!

  • Krista

    The Senn family is in my thoughts and prayers. I am also happy that the fire department is doing all they can for this family. What an amazing story.

  • kc koernke

    Its such a sad day when any little one goes to heaven. My thoughts and prayers go out to the senn family in your time of sorrow!. Just keep in mind you have people to help you through things friends, family, and even strangers! i know you both dont know me but if you need to just talk you can e-mail me and vent and what you say will stay between you and me! I just want you to know you have people here that will listen if you need it. :)

  • Sally T A T

    Why do little children die? the scripture at Psalms 51:5 says from the moment of conception humans are born guilty and a sinner. Therefore, according to Romans 3:23 ; 6:23 "all have sinned and fall short of the glory of God….the wages sin pays is death."……God does not take little children from their parents, as some have been told……God is to loving to separate a child from it's parent. He is the father of life. The devil, Satan is the father of death……the day is coming, and very soon when Jehovah will vindicate His great and Holy Name and bring to ruin those ruining the earth. At the same time He will ruin the one responsible for taking the lives of innocent little children.

  • Susan Bollfrass

    Our four year old grandson, Cooper Knight, died because of this same horrible disease. It will be two years on March 3, but it seems like just a few moments ago. Like Brey, Ponderosa Fire Dept. #62 in Spring, Texas honored Cooper in the same way. I am a bucket of tears after watching the video, our boys were both Mito Warriors and now both are free from their earthly pain and suffering as they run and play in Heaven. Please know that our entire family is holding each of you in our hearts, our prayers and we wish we could be there to hug you and hold you up.

    Cooper's nearly 8 year old brother also has Mitochondrial Disease……we will keep Brey's baby sister inour prayers. May God protect you and bring all of you Peace and Comfort.

  • Judy Edwards

    Jesus said " let the little children come unto me". And for whatever reason that is where Breylon is right now. One of the sweetest children, who blessed his parents for a while and will be there for them when they are called home. God bless you during this extremely sad and difficult time. Our prayers will be with you and your whole family.

  • Mary Dillon

    I did not know this little boy, Breylon, but am so sorry about this. I pray much comfort for his family & loved ones at this very difficult time. He is with Jesus now and healed. God bless & strengthen each & every one of you.

  • HELEN WRISLEY

    I PRAY FOR THE FAMILY OF THIS SWEET CHILD,HE'S HOME AND HEALED.WALKING HAND IN HAND WITH JESUS. GOD BLESS THE FIRE DEPARTMENTS, AND ALL THAT WERE INVOLVED TO MAKE A SPECIAL GOING HOME WISH COME TRUE. LORD, I ASK THAT YOU EASE THE PAIN OFF ALL ,THAT ARE SADDENED BY THE LOSS OF SUCH A YOUNG SOLE.PLEASE TOUCH THEM LORD, SO THEY MAY FEEL THE COMFORT THAT BREYLON FEELS NOW. AMEN